Further Information, Statements and Articles on My Health Record

NUAA has released a statement on My Health Record, a  new initiative by the federal government to create an online summary of your health data. A range of groups and experts have raised serious concerns about privacy and security of the data. Health minister Greg Hunt has announced plans to change some aspects of the scheme in response to widespread community concerns — in particular promising to amend the legislation so law enforcement agencies need court orders to access the records. However, other concerns remain and you can read the list of articles below to decide if you wish to opt out

Everyone will get the chance to opt-out until November 15 (extended by the government after widespread community concerns). At this stage, NUAA recommends if you have concerns, to opt outThere are three key ways to opt out:

  • By visiting www.myhealthrecord.gov.au and opting out using the online portal.
  • Over the phone by calling 1800 723 471.
  • Or on paper by completing a form and returning it by mail. Forms will be available in 2,385 rural and remote Australia Post outlets, through 146 Aboriginal Community Controlled Health Organisations and in 136 prisons.

You can read the government’s web page on the initiative here. Below are a series of links providing further information and commentary on My Health Record and the issues surrounding. NUAA is highlighting them for information purposes, inclusion does not necessarily indicate agreement with the contents.

General issues

AIVL: There is broad support for a 12-month opt-out period

My Health Record lets down the patients who could use it the most

My Health Record Consumer Fact Sheet — Australian Federation of AIDS Organisations

Medical Republic: The Truth about My Health Record — a critical summary

My Health Record Briefing Paper: Produced by Positive Life & SWOP  for PLHIV, sex workers & people who use & inject drugs

‘If in doubt, opt out’: statement and resources from Positive Life

Opinion piece: My Health Record still isn’t safe enough to proceed. It needs more than a band-aid fix

Chronic care patients forced to have My Health Records to access government’s Health Care Homes program

My Health Record privacy framework ‘identical’ to failed UK scheme, expert says

The minister is wrong, media outlet claims there have been nine breaches to date of My Health Record

Why So Many People Are Opting Out of My Health Record

My Health Record an ‘abuse of trust’

ITNews: My Health Record data could be uploaded without consent

My Health Record: former privacy head warned of dangers six years ago

Using My Health Record data for research could save lives, but we must ensure it’s ethical

My Health Record can store genomic information but critics say it’s not ready

The troubling implications of My Health Record’s genetic info plans

The key reasons to opt-out of My Health Record (The Conversation)

The key reasons to opt-in to My Health Record (The Conversation counter-argument)

Your MHR questions answered on cybersecurity, police and privacy — by Tim Kelsey, the head of the Australian Digital Health Agency

First Dog on the Moon: Cassandra the Information Technology Wobbegong Says Opt-Out of My Health Record

Issues of concern to specific communities and sectors

My Health Record a new battleground in family disputes, puts those fleeing abuse at risk

Mums hiding from violent exes fear they’ll be found via My Health Record

‘If In Doubt, OPT OUT’: Mental health Peak Bodies Issue Statement of Concern About My Health Record

ACON: Navigating My Health Record For Trans And Gender Diverse Communities

Scarlet Alliance: My Health Record Information Brief for Sex Workers

Star Observor: Summary of issues relating to LGTBI+ people; people living with HIV; people who use recreational drugs’ and or sex workers

Damaging Our Trust: Why My Health Record Let’s Down Sexual and Gender Minorities

How My Health Record Threatens Teen Health, Privacy

Unions urge members to opt out of My Health Record

Submissions to Senate Inquiry into My Health Record

See the full list

Hepatitis Australia submission

Australian Privacy Foundation submission

ACTU submission

National Council of Single Mothers and their Children submission

Relating to law enforcement access that the government has promised to change:

Health Minister Backs Down on My Health Record — Promises to Amend Legislation

My Health Record to strengthen privacy protections after patient concerns

Private sector may be able to access My Health Record data for research

Doctors outraged that police, ATO can access My Health Record

Police can access My Health Record without court order, parliamentary library warns

Police Union Contradicts Greg Hunt, Says no Warrant Needed to Access My Health Record Data